We are very excited to present this fantastic interview with Bhavani Singh. She is an exceptional mother of Mananjay and an amazing homemaker. Bhavani shares her life experience with her son Mananjay who is a cochlear implantee, dealing with hearing loss.
Hearing loss can have a significant impact on a child’s life, including delayed speech and language development, social isolation, academic difficulties, and emotional and psychological challenges. Early intervention and support can help minimize these effects and improve a child’s overall quality of life.
World Health Organization predicts that by 2050 nearly 2.5 billion people may have some degree of hearing loss. Further, over 1 billion people are at risk for permeant hearing loss. Especially due to unsafe listening practices. Therefore, this statistic is alarming and one should be concerned.
So, hearing health should be given importance. Hence, via this interview, we bring you this story of Little Miracle– Mananjay in his mother’s own words.
Q1. अपने बारे में बताइये।
Mera naam bhavani hai. me ek House wife hu, me proper Rajasthan se hu or abhi 2 saal se mere Bete ki speech therapy ke liye Karnataka ayi hu.
Q2. यह सब कैसे शुरू हुआ?
Mera baccha IVF treatment ke jariye conceive hua hai.or mere first trimester me mujhe chickenpox hue uska asar mere bete par hua.fir mera baccha 32 week’s (premature) birth hua. 29 day’s NICU me struggle Kiya jisme usko small PDA bhi tha(jo naturally close hogaya), jaundice bhi hua.
Q3. अपने बच्चे के बारे में कुछ बताइए।
Mere bete ka naam Mananjay hai or wo bohot active, hamesha khush rehne wala, acchi soch samajh wala(uski umar k hisab se)hai.sports, padhai, extra curricular activities me bhi accha hai.sabka laadla hai.
Q4. आपको क्या प्रेरित किया?
Muje sabse jyada jo cheez prerit karti hai wo hai Manan ka chehra, jab bhi me isse dekhati hu to lagta hai meri vajah se (rubella infection) isko ye problem Hui hai to jab tak jinda hu isko itana sikhau k ye jab bada ho to bole ki haa meri mamma ne muje is kabil banaya k aaj me is mukam par khada hu.(jo bhi iske Naseeb mein likha hai).
Q5. जीवन का कोई कथन।
Mere jivan ka yahi “kathan” hai k bas haar mat mano, koshish karte raho. Ek do din men safalta nahi milegi. Mere jivan men bohot ese mode aaye ki me haar k baith sakti thi, lekin nahi mene bas than liya ki koshish karne valon ki kabhi har nahi hoti.
Q6. आपकी कुल में सफलता की कहानी।
Manan shuru se hi bohot active hai.2.5 year tak hame pata hi nahi chala k isko koi sunane me problem ho Rahi hai. Thode waqt baad sabse pehle meri maa ko dought hua k kuch problem ho sakti h, fir sab Ghar Wale uspar jyada dhyan dena shuru kiya pichhe se aawaj karna us naam bolna to wo response nhi karaha tha.
Baad me ENT specialist k pass Gaye to unhone bera test k liye bola or reports me aaya k uska 100% loss k dono ears.waha se shuru hua ek or sangharsh, bohot doctor’s ko dikhaya to finalize hua k isko cochlear implant surgery hi karwana padega.fir humne ek (right) ear me isko cochlear implant karwaya. us din se uski life ne Naya mode liya,bohot sari taklif,test, surgery recovery ki pida sab sehane k baad dhire dhire adjust hone laga processor k sath.sunane laga,uski khushi chehre par saf najar aane lagi.speech therapy shuru ho gayi or jese hi usane progress karna shuru kiya tha k “corona virus” aagaya or speech therapy ruk gayi lagbhag 1 saal tak fir delay hogaya, online classes k liye bethta nhi tha. Thoda bohot me hi kuch sikhaya karti thi.
Corona virus Jane k baad jab humne wapas speech therapy shuru kiya or hum 6th mapping k liye Gaye or iske audiology test Kiya to pata chala k iska cochlear implant mild failure ho chuka hai.bohot bada Sadma laga sabko.fir uthe or decide Kiya k wapas surgery karwayenge us beech bohot health issues aaye (1 month full virus fever,cold, cough).ye sab thik hone k baad uska re-implantation hua fir se mapping shuru ,fir se speech therapy shuru kiya or abhi bhi chal rahi hai.1 bohot acche school me admission hua or class me good behaviour, good in all activities or padai me bhi acha chal Raha hai.or hamesha koshish karenge ki uski or humari mehnat ka 100% results aaye.
Thank you.
About Speech therapy
A Speech Language Therapist is trained to assess an individual holistically and understand the skill level. This can lead to a diagnosis and thereafter writing a plan of intervention. Speech therapists will provide essential referrals to other allied health professionals or medical professionals, as the client requires. Therapy is not just about improving Speech, it also includes language therapy. Many have a misconception that Speech Therapy is just about teaching Speech, but it is more than that. It improves overall communication, enhances social skills, to cope better with society, and helps in day to day functioning.
About Cochlear Implants
Cochlear implants can improve communication and quality of life for people with severe hearing loss who receive little benefit from hearing aids. Increasingly, cochlear implants in both ears (bilateral) are accepted as standard care for the treatment of severe hearing loss, especially for infants and children who are learning to speak and to process language. Not everyone performs at the same level with this device. The decision to receive an implant should involve discussions with medical specialists, including an experienced cochlear-implant surgeon. The process can be expensive. In some cases person’s health insurance may cover the expense, but not always. Some individuals may choose not to have a cochlear implant for a variety of personal reasons.
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